Contributors

Hello! I am a 17y/o from South Korea, but I am currently studying in the United States. In my free time, I love drawing on my iPad and dancing to K-Pop. I was born with CRUS, but I haven't received surgery because because it is unilateral and not severe. However, I have experienced pain with physical activity and have worked to find ways to minimize such instances. I created this website to offer a space for the stories of various people with RUS. 

Hi, I'm Katja / katjapetersart, a Dutch social work student and visual artist. I'm from 2002. I have post-traumatic unilateral RUS and had 4 surgeries in total on my right elbow. I'm contributing to raise awareness for the condition and to share my long term treatment experience with Post-traumatic RUS. I have a lot of experience with chronic pain. I had a salvage operation in 2023 that was succesful in restoring my range of movement and lessening my chronic pain.

Sarah Weinstein is an advocate for the rare disease community, focusing on raising awareness for radioulnar synostosis (RUS), a condition she herself has. Living in Yardley, Pennsylvania, Sarah shares her personal experiences with RUS to connect with others, promote understanding, and increase visibility. Through her social media platforms and community engagement, she works to create a supportive space for individuals with RUS and their families.